On New Year's Eve 2014, 37 years into her fight with Cystic Fibrosis, Rebecca Poole went into respiratory failure and was placed on a ventilator in a medically induced coma. They told me that she would not be able to breathe on her own without a double lung transplant and then they said she was too sick to qualify for one.
We started 2015 with a prognosis of 'days to weeks'. The year brought pneumonia, aspiration, septic shock, and something called ECMO. I learned that walking on a ventilator was possible even though talking was not. I learned that you need to find joy in every moment because those moments are limited. I learned about Rebecca's weird affinity for tapioca pudding even though she was not a grandparent over 80. I also learned several lessons that helped me get through the situation, both in the hospital and outside of it. I decided to write a book because I believe that this perspective can help others.
We proudly support the Cystic Fibrosis Foundation and the great work they've done towards finding a cure! We've participated in Cycle for Life both pre and post transplant and ask you to donate to our Cycle for Life Team!
The Hospital Comfort Kit: Helpful products from a lifetime of experience.
The mission of CF Cornerman is to be "Always in your corner"
Experience the ride, the afterparty, or BOTH!
THE STORY OF MY WIFE'S FIGHT WITH CYSTIC FIBROSIS, LUNG TRANSPLANT...AND WHAT I LEARNED FROM IT.
Latest & Greatest...
My TEDx talk "The Case for Realistic Optimism"
A two minute video with highlights of our story
...or join us!
The book "Lessons from a CF Cornerman" won the Gold Medal at the
March 19th 2018 issue - Read it HERE
Copyright © Ray Poole. All rights reserved.