Follow Me

a book by Raymond L. Poole
The story of my wife's fight with Cystic Fibrosis, lung transplant...and my changing role in all of this.

On New Year's Eve 2014, 37 years into her fight with Cystic Fibrosis, my wife Rebecca went into respiratory failure and was placed on a ventilator in a medically induced coma. They told me that she would never be able to breathe on her own without a lung transplant and then they said she was too sick to qualify for one.

We started 2015 with a prognosis of 'days to weeks'. The year brought pneumonia, aspiration, septic shock, and something called ECMO. I learned that walking on a ventilator was possible even though talking was not. I learned that you need to find joy in every moment you can because those moments are limited. I learned of Rebecca's weird affinity for tapioca pudding even though she was not yet in her 70's. I also learned several lessons that helped me get through the situation, both in the hospital and outside of it. I decided to write this book because I believe that these lessons can help others.